The 12-year-old’s family say they were “stripped of all our rights” in a legal battle with doctors.
Image source, Hollie DanceThe family of Archie Battersbee have said nobody should go through what they had to and have called for an inquiry into the legal battle surrounding the withdrawal of his life support.
The 12-year-old, who was at the centre of a court row between his parents and doctors, died on Saturday.
In a statement, they said they were “stripped of all our rights”.
Barts Health NHS Trust said its staff had provided “high quality care with extraordinary compassion”.
Archie had been in hospital since being found unconscious at his home in Southend, Essex, in April.
He suffered severe brain injuries and needed life-sustaining support, including mechanical ventilation and drug treatment. He never regained consciousness.
His mother Hollie Dance and father Paul Battersbee had asked the European Court of Human Rights to intervene in the case last week as they fought for life support to be continued, but were told it fell outside its scope.
They then wanted him to be moved to a hospice but the High Court, taking medical evidence into account, ruled he was too unstable to be transported by ambulance.
The High Court ruled Archie should remain at Royal London Hospital in Whitechapel, east London.
The family sought permission to appeal against the decision, but that bid was rejected by three justices at the Court of Appeal.
They then asked the ECHR to intervene, but late on Friday, the court said the request could not be dealt with.
